HDAF

Huntington's Disease Assistance Foundation

What people are saying about the film

January 9, 2014 by hdassistancefoundation | Comments Off

“This movie has made a profound contribution to the lives of all the HD patients a                “This movie has made a profound contribution to the lives of all the HD patients and their families. It was such an honour and privilege to be a part of it.” -Dr. Michael Hayden

I attended the premiere with a friend who knew NOTHING about HD and 2 friends who knows a tiny bit about HD (only because of me). They all are now more enlightened and we are all learning more. Through this movie, I discovered a former soccer teammate/friend of nearly 10 years is also at-risk for HD just like me. We had NO idea about one another’s situation. We haven’t seen each other in years but will be reconnecting soon to share our stories and support one another. Additionally, while waiting in line last night I met a friend of a friend who recently tested positive for HD. He and I will be connecting soon too.

My family is 2500 miles away and aside from attending a few support group meetings 4 years ago, I’ve had no one to talk to about this. Your movie has started dialog and it’s got my hairs on my arms raised thinking about how this rare disease may not be as rare as originally believed. It really makes me think of of ActUp and Silence=Death. Thanks for helping break the silence!” -Dan

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“What a beautiful and touching movie!! I cried the entire time and left feeling inspired. Courtney’s segment was incredible. She is so brave! I loved seeing her spreading my dad’s ashes at the top of the mountain.

You told each story with so much love and respect. Katy’s story absolutely breaks my heart. She is so strong. I saw a lot of similarities between Mandy’s experience and my own life.

I always felt like we were the only ones in the world living with this disease. It is inspiring to see everyone openly telling their stories. You are changing the world! Congratulations!! Thank you!!” -Kerry

“Filled with peace and joy, reflecting on the big things that matter: loved ones and life in the moment.” -Pamela

“This movie has made a profound contribution to the lives of all the HD patients and their families. It was such an honour and privilege to be a part of it.” -Dr. Michael Hayden

“I was so moved by ‘Alive and Well.’ Your movie really got the message out about Huntington’s disease and the photography was so beautiful. I loved the nature shots between each documentary about someone dealing with Huntington’s…The free ticket gave me a big reason to donate to HDSA.org.” -Birgtta

“Thank you so much for inviting us all to share your film. It was truly moving and inspiring and just beautiful to look at. Such tough subject matter, but presented so gracefully. I admit, I wept my way through it, but I never felt manipulated. Just deeply moved.” -Hannah

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Watch the Trailer